Information For Young Person

Thank you for visiting this website!

If you are a 10 – 17-year-old living in Wales who has used unscheduled emergency asthma care, e.g., NHS 111 or 999 calls, unscheduled GP appointments, and emergency department visits for a sudden severe asthma attack, and are interested in research, we would like to invite you to participate in our research.

You can participate by joining a WatsApp/telephone conversation (interview) with a friendly researcher for 30 – 45 minutes. You will receive a £25 Thank You voucher for your time and support.

During the conversation (interview), you will be asked to share your experience visiting the Emergency Department or unscheduled GP appointment for a sudden, severe asthma attack. The conversation will be screen/audio-recorded with your permission and that of your parents (consent). Any information you give us will be screen/audio-recorded and stored in a locked file (confidential). Only people from the immediate research team with an electronic key can access the file. You can stop participating in the conversation any time you wish, without giving a reason, and no one will be angry.

Feel free to talk to your parents or guardians or a friend before you decide to take part in the research. If you wish to participate, please fill this form.

To know more about the study, click here. Alternatively, you can also email Gargi at 2334588@swansea.ac.uk or WatsApp/call at 01792 513108

Your Rights

  • You might want to talk to your parents or guardian or a friend, before you decide to take part in this research
  • It is absolutely your decision to take part in the research. You do not have to say ‘yes’
  • If you decide to take part, please note that everything will be private (confidential) and no one will be able to identify you by your name (anonymous)
  • The only time we will tell someone about it is if we were worried about your safety
  • If you take part, you can change your mind anytime without giving a reason and this will not be a problem at all
  • We will keep your responses in a protected file at a secure place. Check out – How we look after your information section to learn more

About the WatsApp/telephone call (Interview)

Q. Where will this conversation (interview) take place?
Ans. This conversation (interview) with the researcher will take place over WatsApp chat or telephone call

Q. Will I need to take time off school and if so how much time?
Ans. No, to participate in this WatsApp/telephone conversation you would not have to take time off from school.

Q.Would it affect my social life?
Ans. No taking part in this WatsApp/telephone conversation will not affect your social life.

Q. What are the possible benefits of taking part in this research?

Ans. There are no immediate benefit of taking part in this research. However, with your support we can empower young people living with asthma to manage their health conditions and navigate the system better.

Q. What are the possible risks of taking part in this research?

Ans. We are aware that sharing your experience about visiting the ED has the ability to cause you discomfort. If this occurs, please tell your parents, teachers, guardian or any trusted adult. Alternatively you can also check this list of useful contacts as well.